Don’t look back, you’re not going that way

I have this phrase glued to the wall above my front door. It's the last thing I see as I leave the door, just above an Aristotle quote "We are what we repeatedly do" (particularly apt for someone with OCD) and Hemingway, "Now is no time to think of what you do not have. Think [...]


The complexity of management and self-management of Joint Hypermobility Syndrome

I am a text book case on how not to manage Joint Hypermobility Syndrome. My life has been marked by times where I lacked any support contrasting by time where it has beenĀ over medicalised, excessively complicated and many assessments I have had no choice but to undergo was heavy on the scepticism and risk management [...]

I have more than one story to tell

People with disabilities, particularly those with invisible disabilities face many challenges that can be hard to come to terms with. Often, it is up to us to come to a place of acceptance and understanding without much, if any support.It is up to us to become experts in our condition, to struggle, usually for years [...]