I have more than one story to tell

People with disabilities, particularly those with invisible disabilities face many challenges that can be hard to come to terms with. Often, it is up to us to come to a place of acceptance and understanding without much, if any support.It is up to us to become experts in our condition, to struggle, usually for years [...]


Five tips for dealing with the winter blues

It is cold, wet and dark. Every year I struggle to get through January and February. I hate the deep winter months almost as much as I do sunnyAugust. I hurt more, I am tired, I am usually overweight from having had to increase my asthma medication that just piles on the pounds once the [...]


The last three months of the year are my favourites. I love autumn, October is not only gorgeous, but also the end of heat-induced migraines, seizures and pollen-driven hayfever accompanied by frequent asthma attacks. My health affects what, how and how much I play. We moved house this month, Hawkgirl had her first birthday and [...]

What would you be if you were attached to another object by an inclined plane wrapped helically around an axis?

Yup, screwed it is. I'm 36 weeks pregnant, my hips decided to stop staying in place on a near permanent basis and I have a very bad cold/chest infection. Nothing is ever simple when you pile one thing on top of another. EDS has its gamut of issues, add to it being very pregnant and [...]

In search of a new PA; again

I'm starting to wonder whether I am an incredibly exacting person to work for as I simply can't seem to hold on to a personal assistant/carer on a permanent basis. The first quit due to personal health issues, the second quit before she even started and the third quit because she doesn't enjoy cleaning. I'm [...]

Disability Living Allowance – Ten Things I spend it on

DLA is a non-means tested benefit that can be claimed by any disabled person under 65 (over 65 it is replaced by attendance allowance) that require assistance with care and/or mobility needs. There has been quite a flurry surrounding this particular benefit with new changes to how it is claimed in the works that centres [...]

One… two… fire. Crichton: Hey, what happened to three?

I panic very easily. Little things often cascade into very big things and it's difficult to not feel as if its a slippery slope where one becomes ten within a matter of minutes around every bend. I went for a walk into two with my new personal assistant and husband in tow and as we [...]

From the top of the mountain, you cannot see the mountain

Today was a pretty average day as days go. I spent it lying down for the most part, attempting to sit up every hour which didn't feel like a very good idea. The lowest my pulse dropped was 103 and the highest my blood pressure rose was 70/40. I have had my rib kicked out [...]