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In The Fringes

There is more than one kind of freedom

I haven’t been sleeping well. Insomnia is a problem that comes and goes and when it arrives, it’s crippling. It begins a viscious cycle of anxiety, over-thinking, obsession and paranoia. Continue reading “There is more than one kind of freedom”

The law of diminishing returns and the novelty of surprises

Supergirl loves surprises. One of her primary fascinations in life is how to generate a reaction of surprise and delight in everyone around her.

There remains one vital flaw in her plan – once she has succeeded, she attempts to recreate the identical experience again hoping to illicit the same response. To her greatest frustration, with each repetition, the response of her audience diminishes. Continue reading “The law of diminishing returns and the novelty of surprises”

The complexity of management and self-management of Joint Hypermobility Syndrome

My daughter who has EDS/HMS started her second term at school this week and the going is getting a little tough. Continue reading “The complexity of management and self-management of Joint Hypermobility Syndrome”

“Life’s a great balancing act”

I have been reading my daughter a poem every night after we complete our three bed time stories – the first now read to me by Supergirl. Continue reading ““Life’s a great balancing act””

Ten tips for feeling better quicker when nausea and vomiting strikes

Supergirl started throwing up after school on Friday afternoon. We had dinner at the table whilst she was lying on the couch on the other side throwing up her cooked school lunch. Continue reading “Ten tips for feeling better quicker when nausea and vomiting strikes”

What can I do

I started this blog 7 years ago for two main reasons.

Continue reading “What can I do”

Why do we apologise for not fitting the standard mould?

Continue reading “Why do we apologise for not fitting the standard mould?”

“There’s more to the truth than just the facts.”

eyes-141363Perception. Perception is connecting what you see, hear, smell, feel, taste with what you know and expect. It is something that happens underneath conscious awareness. It traps me every time in a space where I do not belong. Continue reading ““There’s more to the truth than just the facts.””

“The best lies about me are the ones I told.”

It started slowly after a lovely day. Monday. Monday was the first true day of spring.

We set out for an Extreme Easter Trail at Foxbury in the New Forest, arranged by Cadbury’s and the National Trust. It was extreme.

Supergirl learned how to make fire with a spark, made smores (toasted marshmallows) over an open fire and I spilled hot coffee over my clean jeans because I overreached and thought I could manage a disposable cup. Continue reading ““The best lies about me are the ones I told.””

Don’t spend time beating on a wall, hoping to transform it into a door.

It is an easy mistake to think that we have all the time in the world. I’ve had a cold/flu/chest infection/asthma flare-up, call it what you will, for months and January with all its good intentions came and went in a hazy unproductive, miserably cold blur with the latter half particularly problematic. Continue reading “Don’t spend time beating on a wall, hoping to transform it into a door.”

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