The old cliché is that to progress you take two steps forward one step back. Getting a PHB in Wiltshire is one step forward and one step back. Lily was assessed eligible for CHC care in August 2013. Since that point it has been a continuous stream of meeting after assessment after assessment and now apparently a complete medical reassessment.
The system is designed so that there can be an annual check both of eligibility and medical situation for the long term seriously disabled or sick. This 15 page assessment called the DST talks to the patient and looks at their history, groups types of symptoms, talks to OTs, physios, GP and specialists. It is carried out by a qualified medical practitioner and the result is mathematically scored to define their need. From this the CCG makes a decision as to the level of funding and within 28 days a package should be in place.
This is a sensible system.
This should mean a long term patient gets reassessed regularly and then has a decision made and then is helped until the outcome of the next assessment in a years time.
Lily has been stuck in a limbo of meetings and requests for the last year which has culminated in a set of requests to go an see multiple specialists and practitioners because ‘further assessment was required in order to acquire create understanding of the scope an extent of the medical conditions’.
She has also been informed that as 12 months are now up she will need to go through a medical assessment of her medical situation and eligibility for CHC care.
I didn’t mis-state that and you did not mis-read it. After having had CHC care for 3 years CHC feel they do not understand the scope of her conditions and so would like a complete reassessment. This assessment is to be concurrent with another complete reassessment of her eligibility and medical situation and this is all after a year where they have been unable to get a functioning PHB operating.
I’ve been through every website and every book both on a local and national level on the way this is supposed to work and nowhere (including in the timetable give to us by the CCG) can I find any justification or rationale for two sets of concurrent assessments.
They assessed Lily last year. They found her eligible for help. They have not helped and now seem to wish to reassess last years assessment as well as starting this years. At the same time.
Don’t get me wrong – we’re perfectly happy to have her reassessed for CHC care. Its right and proper that there be checks both in case her medical condition has worsened and in case it has improved.
But shouldn’t there be some decisions made at some point and help given as well?
Written by husband and Lily’s primary carer for the last 11 years, Chris Ellis