My Personal Health Budget has gotten very complicated and confusing. We are in the process of compiling paperwork for a formal complaint to submit to the Ombudsman and there are hundreds of pages of e-mails and supporting documentation to print out, organize and file. Just my support plan is almost 30 pages, having grown from 2 sheets of A4. The attached budget grew from half a page to multiple confusing pages riddled with duplications after being amended at Wiltshire CCG’s request by Compass.
We have spoken to a lawyer who has given us some pointers on how to put our case together for the Ombudsman and I cried looking over the paperwork. I think I should be angry, but I am not. I am just stressed out of my mind, sad and frustrated. Sifting through all of it has been very stressful and I am saddened by the fact that what could have been a simple, positive experience by everyone involved has turned into an going nightmare now ticking over into more than a year with still no real end in sight.Every time we complete the step outlined, another step is added on before my support plan can be signed off.
Instructions go back and forth, paperwork is lost for weeks on end multiple times, money is paid into the wrong account when it finally is paid (not that I am able to use it for much), what is said in meetings is denied in writing after the fact, the support plan is signed off by the local community matron and within a week after she resigns, the document it is flagged for review and the process is halted for 3 months to the earliest meeting date Wiltshire CCG’s CHC team could attend. Every time I have arranged for an advocate to be present, meetings are rescheduled or appointments not kept and nobody shows up. Continue reading